“We’d be lost without it”
01 April 2022
Wendy Barton lives with her family just outside the town of Corby in Northamptonshire
In August our son Logan, aged 5 months, had his first seizure, during which he stopped breathing. He was rushed to hospital by ambulance and had to go straight into resus. During an extended hospital stay he underwent a series of tests, but no cause could be found.
Logan then had several more seizures over the next few weeks, all requiring hospitalisation. They became an almost daily occurrence, and we quickly realised they were happening in his sleep. As parents we didn’t want him to go through them alone, so we started monitoring him constantly,
taking it in shifts overnight.
At first we used a baby monitor with a movement sensor that sat under a mattress, but we began to wonder if a product existed that did the opposite – detect the movements of a seizure, rather than the absence of movement. We researched online, and found that only a few companies manufactured
such a device. We opted for EasyLink UK, as it seemed they had the device best suited to our needs – an MP5-UT Epileptic Seizure Movement Monitor.
We purchased the device around two months ago, and since then, Logan has been diagnosed with epilepsy resulting from an extremely rare genetic disorder. The Easylink team provided excellent after-sales service, which ensured we got the device set up correctly. It comes out of the box fully assembled – you only have to put the batteries in the pager – and can be set off by movement and/or sound. There’s also a delay function, so that normal movements such as rolling over won’t set the monitor off.
The sensitivity of the mattress sensor pad can be altered, which was very helpful in our case. Logan’s seizures can sometimes consist of a light ‘shaking’ of one or more limbs, so it was great that it could be set to detect these subtler movements as well as those involving the whole body.
It took a few goes to get the device set up just as we wanted it, but it now works perfectly. Most of all, it allows us as parents to sleep again, as we trust the device to wake us when our son needs us. So far, it has alerted us to two seizures whilst he has been in his cot asleep – we'd be lost without it.
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